Dignity for Deeply Forgetful People: How Caregivers Can Meet the Challenges of A

Description: Dignity for Deeply Forgetful People by Stephen G. Post, Jade C. Angelica "A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimers organizations across the globe"-- FORMAT Hardcover LANGUAGE English CONDITION Brand New Publisher Description For caregivers of deeply forgetful people: a book that combines new ethics guidelines with an innovative program on how to communicate and connect with people with Alzheimers.How do we approach a "deeply forgetful" loved one so as to notice and affirm their continuing self-identity? For three decades, Stephen G. Post has worked around the world encouraging caregivers to become more aware of—and find renewed hope in—surprising expressions of selfhood despite the challenges of cognitive decline. In this book, Post offers new perspectives on the worth and dignity of people with Alzheimers and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. This bias, Post argues, is responsible for the abusive exclusion of this population from our shared humanity. With vignettes and narratives, he argues for a deeper dignity grounded in consciousness, emotional presence, creativity, interdependence, music, and a self that is not "gone" but "differently abled." Post covers key practical topics such as: • understanding the experience of dementia• noticing subtle expressions of continuing selfhood, including "paradoxical lucidity" • perspectives on ethical quandaries from diagnosis to terminal care and everything in between, as gleaned from the voices of caregivers• how to communicate optimally and use language effectively • the value of art, poetry, symbols, personalized music, and nature in revealing self-identity• the value of trained "dementia companion" dogsAt a time when medical advances to cure these conditions are still out of reach and the most recent drugs have shown limited effectiveness, Post argues that focusing discussion and resources on the relational dignity of these individuals and the respite needs of their caregivers is vital. Grounding ethics on the equal worth of all conscious human beings, he provides a cautionary perspective on preemptive assisted suicide based on cases that he has witnessed. He affirms vulnerability and interdependence as the core of the human condition and celebrates caregivers as advocates seeking social and economic justice in an American system where they and their loved ones receive only leftover scraps. Racially inclusive and grounded in diversity, Dignity for Deeply Forgetful People also includes a workshop appendix focused on communication and connection, "A Caregiver Resilience Program," by Rev. Dr. Jade C. Angelica. Author Biography Stephen G. Post is the director of the Center for Medical Humanities, Compassionate Care, and Bioethics at the Renaissance School of Medicine at Stony Brook University. He is the author of The Moral Challenge of Alzheimer Disease: Ethical Issues from Diagnosis to Dying. Table of Contents PrefaceChapter One. In Praise of Caregivers and DignityChapter Two. Hope in Caring for Deeply Forgetful People: Why It Matters and Where to Find ItChapter Three. Answers to Sixteen Questions Caregivers Ask from Diagnosis to DyingChapter Four. The Seventeenth Question: Preemptive Physician-Assisted Suicide (PPAS) for Alzheimers Disease: A CautionChapter Five. A Caregivers Ethical Purpose: Preserving Dignity, Ten Manifestations of Care, and Respect for the Whole Story of a Life Chapter Six. Respecting the Preferences of Deeply Forgetful People in Health Care and ResearchChapter Seven. "Is Grandma Still There?" The Mystery of Continuing Self-IdentityAn Epilogue. North WindA Caregiver Resilience Program: Meeting Alzheimers: Learning to Communicate and Connectby Rev. Dr. Jade C. AngelicaReferencesAcknowledgmentsIndex Review Essential reading for all caregivers, family, and healthcare providers for deeply forgetful people.—Library Journal Promotional For caregivers of deeply forgetful people: a book that combines new ethics guidelines with an innovative program on how to communicate and connect with people with Alzheimers. Long Description For caregivers of deeply forgetful people: a book that combines new ethics guidelines with an innovative program on how to communicate and connect with people with Alzheimers. How do we approach a "deeply forgetful" loved one so as to notice and affirm their continuing self-identity? For three decades, Stephen G. Post has worked around the world encouraging caregivers to become more aware of-and find renewed hope in-surprising expressions of selfhood despite the challenges of cognitive decline. In this book, Post offers new perspectives on the worth and dignity of people with Alzheimers and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. This bias, Post argues, is responsible for the abusive exclusion of this population from our shared humanity. With vignettes and narratives, he argues for a deeper dignity grounded in consciousness, emotional presence, creativity, interdependence, music, and a self that is not "gone" but "differently abled." Post covers key practical topics such as: * understanding the experience of dementia * noticing subtle expressions of continuing selfhood, including "paradoxical lucidity" * perspectives on ethical quandaries from diagnosis to terminal care and everything in between, as gleaned from the voices of caregivers * how to communicate optimally and use language effectively * the value of art, poetry, symbols, personalized music, and nature in revealing self-identity * the value of trained "dementia companion" dogs At a time when medical advances to cure these conditions are still out of reach and the most recent drugs have shown limited effectiveness, Post argues that focusing discussion and resources on the relational dignity of these individuals and the respite needs of their caregivers is vital. Grounding ethics on the equal worth of all conscious human beings, he provides a cautionary perspective on preemptive assisted suicide based on cases that he has witnessed. He affirms vulnerability and interdependence as the core of the human condition and celebrates caregivers as advocates seeking social and economic justice in an American system where they and their loved ones receive only leftover scraps. Racially inclusive and grounded in diversity, Dignity for Deeply Forgetful People also includes a workshop appendix focused on communication and connection, "A Caregiver Resilience Program," by Rev. Dr. Jade C. Angelica. Review Quote "Essential reading for all caregivers, family, and healthcare providers for deeply forgetful people." Promotional "Headline" For caregivers of deeply forgetful people: a book that combines new ethics guidelines with an innovative program on how to communicate and connect with people with Alzheimers. Details ISBN1421442493 Short Title Dignity for Deeply Forgetful People Publisher Johns Hopkins University Press Language English ISBN-10 1421442493 ISBN-13 9781421442495 Format Hardcover Subtitle How Caregivers Can Meet the Challenges of Alzheimers Disease Year 2022 Imprint Johns Hopkins University Press Place of Publication Baltimore, MD Country of Publication United States Pages 288 Illustrations 1 Line drawings, black and white; 2 Illustrations, black and white Publication Date 2022-07-26 NZ Release Date 2022-07-26 US Release Date 2022-07-26 UK Release Date 2022-07-26 Author Jade C. Angelica Alternative 9781421442501 DEWEY 616.8311 Audience Professional & Vocational AU Release Date 2022-04-30 We've got this At The Nile, if you're looking for it, we've got it. With fast shipping, low prices, friendly service and well over a million items - you're bound to find what you want, at a price you'll love! TheNile_Item_ID:161820854;

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